FAQs

What type of donation can I make?

Technically anything a person can own can be held by the trust but we are not prepared to manage non-cash assets. Please see the Donate page to donate funds or contact us for other types of donations.

How can funds be added to the trust?
Please see the Donate page.

Who is Nora Johnson?
Please see the Nora page.

What is Rett Syndrome?
Please see the Rett Syndrome page.

How long does the trust last?
The trust is established for the duration of the life of Nora Johnson.

What can trust funds be used for?
The funds can be used for almost anything as long as it’s directly for Nora’s benefit. Examples include medical equipment, clothing, travel, food, medication or healthcare. The trust can also pay for expenses for it’s own administration or advisory such as tax or legal representation. Since the trust is administered by Nora’s parents, there are currently zero administrative expenses.

Who are the trustees?
Nora’s biological parents are the grantors and trustees.

Is my donation tax deductible?

Probably not but please consult your tax advisor! We’d be happy to provide a receipt for your donation upon request. You will also get a receipt automatically from Paypal.

How can I contact the trustees?
Please use the contact us page.